The European Health Data Space
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The European Health Data Space
This research paper provides an assessment of the legislative proposal for "The European Health Data Space", including linkages with other EU measures and with Member State rules and laws. It also includes recommendations on further steps needed in order to achieve, facilitate and improve health data sharing, exchange and re-use across the EU. This document was provided by the Policy Department for Economic, Scientific and Quality of Life Policies at the request of the committee on Industry, Research and Energy (ITRE).
The European Health Data Space
Author: Santa Slokenberga
language: en
Publisher: Taylor & Francis
Release Date: 2025-03-06
This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health. Chapters 2, 10 and 11 have been made available under a Creative Commons Attribution-NonCommercial-NoDerivatives (CC-BY-NC-ND) 4.0 license. Chapter 5 has been made available under a Creative Commons Attribution (CC-BY) 4.0 license.
Unlocking The Potential of Health Data Spaces With The Proliferation of New Tools, Technologies and Digital Solutions
Author: Gokce Banu Laleci Erturkmen
language: en
Publisher: Frontiers Media SA
Release Date: 2025-03-07
Technology is a key driver for innovation in the medical and the health sectors at large. Data-intensive applications and services can provide better and more cost-efficient solutions with high impact for improved point-of-care solutions, integrating health data from different sources, tailored to the specific health care needs of the individual, thus helping to achieve better patient management and improved clinical outcomes. In Europe, the relatively recent proposal for a regulation to set up the European Health Data Space - aiming to unleash the full potential of health data - will open new opportunities for synergies and value co-creation as part of high-performance stakeholder-driven ecosystems, while also ensuring citizens to take control of their own health data. With regard to this special Research Topic, we consider health data spaces as cross-institutional organizational and technical solutions for safe and secure health data exchange between different stakeholders for better health care and research.