Research Partners With Lived Experience
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Research Partners with Lived Experience
This book aims to foster collaborations between patients who have intense lived experience with a medical condition or family violence and researchers investigating them. Inviting patients or survivors into the research team is found to have significant advantages, and chapters review the literature on the benefits they can bring to investigative research teams. The collaboration can take place at multiple stages of research from helping to research design, participating in co-investigators, contributing to the interpretation of results, etc. The conditions addressed in this book include medical conditions from anxiety, postural orthostatic tachycardia syndrome, lupus, asthma, chronic kidney disease, etc. The authors are higher degree students, academics, and active research team members who share their experiences. This is be instrumental in helping patients and survivors decide whether to transition to research. It will also support research team leaders in determining how to benefit from the new perspectives researchers with lived experience bring. The personal narratives provide insight into the challenges and rewards of having lived experience while conducting research. This book is a valuable resource for researchers in clinical fields who have been touched by firsthand exposure to a condition and have been motivated to conduct research in the respective fields. The chapters will enrich understanding for adult patients and survivors and for parents of children suffering intense experiences, who engage with the latest research publications. It will also broaden the understanding of medical, biomedical, and health sciences students interested in reading the narrative accounts of patients and survivors. Readers will gain refreshing perspectives and insights. The book relates to patients managing all kinds of noncommunicable diseases or experiences of violence, and how they can share their valuable experiences into future advancementto research. It is related to SDG 3, good health and well-being.
A Guide to Statutory Social Work Interventions
In recent years there has been a significant shift within social work practice towards recognising the expertise of people with a lived experience. As a result service user involvement is now embedded into curricula. Throughout this textbook, service users and carers detail their experiences of interventions including being detained under the Mental Health Act, having a child removed to a place of safety and having a carer's assessment. In meeting professional standards such as the Professional Capabilities Framework, students and social workers are required to take into account service user perspectives, and to collaborate with them to achieve positive outcomes. Chapters end with advice to social workers directly from contributors, providing invaluable perspectives on different intervention situations. There is specific focus on statutory social work throughout, as well as an exploration of broader implications of interventions, the underpinning legislation, policies and research.
Investigating Subjectivity
Much has been missed by social researchers in their attempt to understand the human experience as a series of rational, cognitive choices. What comes under the rubric of "lived experience" fits no researcher's model other than, in the words of one of the volume's contributors, "one damned thing after another." Human subjectivity in lived experience, both that of the subject and of the researcher, is the topic of Investigating Subjectivity, an important corrective to the cool, disdainful stance of most previous social research. The dozen contributors examine various aspects of subject--the emotions, the gendered nature of experiences, the body-mind relationship, perceptions of time, place and setting, understanding of the self--and how these elements provide a fuller understanding of the human condition, incorporating subjectivity into research requires a new set of methods--systematic introspection, self-ethnography, staged readings, poetry, stories--many of which are demonstrated in the book. It also requires a focus on mundane (minor ailments, media images, hobbies) and extraordinary (exotic trips, earthquakes, abortion experience), elements, which make up the bulk of lived experience, and how people react to these life events. Investigating Subjectivity stands out from any other books in the field because the emphasis is on research rather than theory or conceptualization. This outstanding volume is quality reading for academicians and undergraduate and graduate students in sociology, cultural studies, qualitative methods. and communication, especially those interested in emotions, narration, textual analysis, and symbolic interaction.