Pku Mom
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Pku Mom
A TRUE STORY OF A MOTHER LOVE AND DEVOTION TO HER CHILDREN. COVERING 40 YEARS OF THIS DISORDER AND PROBEMS FACED BY A CAREGIVER THAT WILL MAKE YOU WEEPTAKEN FROM THE RADIO PROGRAM AND AUDIO BOOK " SLEEP WITH THE ANGELS, PAUL."
Chronic Illnesses, Syndromes, and Rare Disorders
Author: Marlene Targ Brill
language: en
Publisher: Bloomsbury Publishing PLC
Release Date: 2016-08-04
While medical conditions that affect large populations are familiar to most people, there are lesser-known afflictions that do not get attention simply due to the fewer number of those affected. Literature and online resources about these conditions are not only limited but primarily aimed at adults. Consequently, teens who are susceptible to these disorders are often unable to find information that speaks directly to them, which can prove both frustrating and discouraging. In Chronic Illnesses, Syndromes, and Rare Disorders: The Ultimate Teen Guide, Marlene Targ Brill looks at conditions that affect thousands of young adults. Though not quite as common as other medical issues, these afflictions are no less threatening to teens who want to know more. Chapters in this book address Celiac diseaseCrohn's diseaseDown syndromeHemophiliaMelanoma Multiple sclerosisPhenylketonuriaSickle cell diseaseTourette syndrome In addition to providing specific information about each of these conditions, this book also offers general advice to teens who face medical challenges in general. An invaluable resource for young adults and their families, Chronic Illnesses, Syndromes, and Rare Disorders: The Ultimate Teen Guide offers hope to the many thousands of people looking for answers.
My Children and Mito
Mitochondrial diseases affect at least 1 in every 4,000. Because these diseases have only recently been recognized and diagnosable by the medical community, many individuals are misdiagnosed or go undiagnosed. I am on a mission to raise awareness of mitochondrial diseases. My book details our family struggle with mito.