Navigating Life With Multiple Sclerosis
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Navigating Life with Multiple Sclerosis
Author: Kathleen Costello
language: en
Publisher: Oxford University Press
Release Date: 2025-04-10
Multiple sclerosis (MS) causes a myriad of physical, cognitive, and emotional symptoms that impact function and quality of life for those with the disease and those providing care. Navigating Life with Multiple Sclerosis is a practical guide for meeting the challenges of this life-long, unpredictable disease.This insightful guide offers a detailed description of the essential components of comprehensive MS care, from disease and symptom management, rehabilitation to enhance function, safety and independence, social and emotional support, and attention to overall health and wellness for both patients and caregivers. Each chapter offers solutions and guidance based upon the authors' interdisciplinary perspectives and years of clinical and research experience. The person with MS is the center of the care team and this book provides guidance for communicating effectively with healthcare providers, participating comfortably in shared decision making, and advocating confidently for personal healthcare needs and priorities.
Navigating Life with Amyotrophic Lateral Sclerosis
Author: Mark B. Bromberg
language: en
Publisher: Oxford University Press
Release Date: 2017
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Navigating Life with Dementia
"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--