Epilepsy On Our Terms
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Epilepsy on Our Terms
Author: Georgia D. Montouris
language: en
Publisher: Oxford University Press, USA
Release Date: 2008
Nearly three million people in the United States live with epilepsy every day and another 180,000 Americans develop epilepsy every year. Around the world, more than 60 million people have epilepsy. Epilepsy impacts everyone in different ways, as well as their families, friends and professional caregivers. This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends. Their stories reveal the terror, uncertainty, and frustration felt by children an dparents after an initial seizure or a diagnosis of epilepsy and document the ongoing trials, tribulations, and triumphs of coping with seizures, medication schedules and side effects, health care providers and hospitals, schoolmates, siblings, relatives and friends. These accounts provide realistic insights into the myriad issues encountered in living with childhood epilepsy. The book also includes a straightforward medical discussion of childhood seizures, written in layperson's terms; a glossary of medical terms; and a guide for schoolteachers and parents.
Introduction to Epilepsy
Author: Gonzalo Alarcón
language: en
Publisher: Cambridge University Press
Release Date: 2012-04-26
Covers all aspects of epilepsy, from basic mechanisms to diagnosis and management, as well as legal and social considerations.
In Our Words
Psychogenic Non-Epileptic Seizures (PNES) can cause blackouts, collapses, involuntary movements, loss of memory and have major impact on quality of life. Whereas epilepsy is caused by abnormal electrical activity in the brain, PNES are psychological-based responses to triggers inside or outside the body that are perceived as threatening by the person affected. PNES are poorly understood by the medical community. It is common for doctors to struggle to explain this diagnosis, which can leave their patients frustrated and confused. Often people are told that their PNES are caused by "stress" and sent away with no further support or advice. It is no wonder that those affected feel isolated, abandoned and hopeless about living with the condition. In Our Words: Personal Accounts of Living with Non-Epileptic Seizures shows those diagnosed with PNES that they are not alone, and how others have courageously managed to come to terms with their seizures. These heartfelt personal accounts will also allow family, friends, healthcare providers and researchers to gain more understanding of the condition and work to provide a better quality of life to those living with PNES.